aging in place, Caring for a parent, Death & Dying, Dementia, in-home care, Long-term care options

Leaving Before the Rains Come

Follow my blog with Bloglovin

The assisted living residence called last week. Mama’s name is on the waiting list there. Every now and then over the years they would call when her “favorite apartment” opened up. She kept telling them she wasn’t ready. They called a few months before I moved home, and she called me.

“Are you really going to come and live with me for two years?” she asked.
“One year,” I said firmly.
“So I should turn down this apartment?”
“Do you want to move there,” I asked, “or stay at home?”
“If you aren’t coming, I need to take it while it’s available.”
“I’m coming,” I said, waiting.
“Ok.” she said, finally. “I won’t take it.”

I wonder, now, if we helped her get clear what she wanted. I wonder if she needed us to make a different decision for her. But my house was on the market; my decision was made, whether or not it was what she wanted.

The director of the residence called a couple more times after I moved in. Before I decided to stay on past my year—and, it seems now, into eternity—we did get help in the person of an elder care social worker, to determine what she wanted in her heart of hearts. It took a while, lots of caveats and disclaimers, but she wanted to stay. She was grateful. That didn’t stop her from second thoughts whenever things weren’t going smoothly. “I should have taken that best room when I had the chance,” she would say. Maybe so, I would think.

So, when Ellen called last week, I thought the room had become available again. But she and I had talked informally a few months ago, and determined she needs more care now than they provide. It wasn’t why she was calling. She was going through the waiting list, and wondered if my mother should be removed and her $100 deposit refunded. It’s a milestone decision.

“It seems like she’s set for now, is that right?”
“Yes,” I said. “And could she even get in there, now?”
“I don’t think she would thrive here,” she said, “do you?”
“No,” I agreed, imagining her sleeping in her recliner all day, maybe wandering a few doors down the hall with her walker. Or not, fearing she couldn’t see to find her way back to her room. And not able to use the elevator; or know where things were in the tiny kitchen, so she could continue to fix her breakfast; or eat the food in the dining room—not that she ever would have thrived on that count.

It’s easy to second guess decisions. Did we do the right thing, keeping her at home? Last week I was thinking about my youth being in her face all the time (In-Your-Face Aging). Does it make her angry? Keep her clinging to control, even when it seems counter productive? Keep her from accepting lost capabilities and finding new things to enjoy instead of continuing to try to do the old ones? Is that the attraction of the euphemistic “independent living” residence? Seniors are surrounded by their peers, people who are in the boat with them.

I am not in her boat with her, just as my daughter is not in my boat. We are all at different places in our lives. Sometimes I think it’s not a good idea to have my own coming life in my face all the time, but I do have contact with peers. She has few. There’s just me and my sister, and our care team, showing her daily all that she can no longer do.

Or has that kept her active, trying to keep a step ahead of us? Fighting to remember how to use the dishwasher, the dryer; to take care of the property, to retain the names of plants.. She doesn’t instruct me in order to pass on her considerable knowledge; she does it to remind herself that she knows. If she didn’t have me and her caregivers to instruct, would she have forgotten?

Yesterday, I learned my aunt, who at 97 had still been living in her home, has moved to assisted living after many falls and deeply into short-memory dementia. And last night, my other living aunt’s caring friend called looking for her children’s phone numbers. She was in the ER, not for the first time. My cousins say she has resisted moving to full-care living, where she has long needed to be. Both my aunts waited until the rains came before they moved. Is that best? Or is it best to get established in a new environment while still healthy and vital?

And who decides? A friend points out it is the children’s responsibility to make sure their elderly parent is safe; it’s not our job to make them happy, especially if what they think would make them happy is not safe—or not possible.

There is no ideal. And so we pick an option and hang on for the ride. I ask myself why I am doing this. What’s in it for me? (And yes, I shamelessly admit, I am not altruistically doing it only for my mother. I don’t believe anyone should do that.) What’s in it for me is to be back here in the part of the country I love. And I have dreams for the future that may never happen, but require holding on to this property. I’m like a migrating animal in the Serengeti, traveling a great distance in the dry season for the idea of rain. It’s what we hopeful humans do.

My mother, who is not given to emotion, wept when I gave her the news of her sister-in-law. (I haven’t yet told her about her sister. One shock at a time.)

“I’m so lucky!” she sobbed as I held her.

“I’m so lucky.” I don’t know exactly to what she referred: her good health, still being at home, her daughters who’ve made it possible? It’s circular really, none would be the case without the other two. We can’t know what her status would be had she moved three and a half years ago—maybe better, maybe worse, certainly different—but she does not regret the decision we made. That’s the best we can hope for. Right?


I borrowed the title of this post from a memoir I’m reading of the same name, by Alexandra Fuller. I just love the words.

11 thoughts on “Leaving Before the Rains Come”

  1. Exactly the dilemma of our family this fall! Mom was just sleeping in her chair until the next visit of the health care aide–isolated at the end of a too long hall (haul) in an “independent” senior apartment which we’d turned into assisted living out of need. She is now in full care and both very confused about what happened to her stuff and her old life, AND stimulated again–being escorted to a nearby piano, talking with people, going to her long-time church and falling back into confusion in the afternoon. (They’re all sick, I’m not sick? Why do I belong here? What’s my diagnosis? Old age. Oh.)


    1. I hate it for them, I hate it so much. And yet, we can’t fix old age any more than they can. I get frustrated with the way my mother keeps trying for the fix: one more doctor, a good poop, the perfect food, the right color GasX… But maybe I am trying to stave it off, too. Get up out of the chair! Listen to your tape. Let your caregiver help you do a fun project rather than wash the dishes. Don’t be old don’t be old don’t be old. And, when she complains about sleeping too much, I suggest she needed the sleep; not to worry about it; it’s okay. I’m more confused than she is! We are both keeping our moms safe. It’s not perfect. I think death would be perfect, but that’s not in our power, so we do the best we can given the parameters. xoxo


  2. You always manage to put into words something I am also feeling but haven’t been able to articulate. With this post: “Sometimes I think it’s not a good idea to have my own coming life in my face all the time…”. Yes. I have been feeling the weight of this lately…the having in the forefront of my mind the intimate details of what it will be like when I am an old old (if I’m so lucky…is it so lucky?) and God forbid, plagued by dementia. It makes me long for time with babies and teenagers. ❤


    1. Me, too. Me, too. It’s why I’m so grateful for my younger family close by. And yet, the juxtaposition of the old and the young, with me in between, is unsettling too. I long to be young again, I fear growing old, I don’t know where I am now. I don’t have enough contact with peers.


  3. Hi Gretchen,

    I love the title of this blog, and I love your writing…magical. Thank you for sharing your experience with us. My brothers and I decided to place our mom in a assisted living facility several years ago. It was best for her, I think, but no choice is ideal. We all just crawl along doing the best we can. God bless.


    1. Thank you, Mary. I don’t think there is an ideal choice, either; both have advantages and disadvantages. There certainly is no option that is best for everyone. We make the best decision we can, and let it be good enough. Blessings on you. Gretchen


  4. I thought you knew about Aunt Ruth or I would have mentioned it. Does she also know about Donald’s (and Mary’s) challenges?


  5. “She doesn’t instruct me in order to pass on her considerable knowledge; she does it to remind herself that she knows.” Brilliant!


Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s